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The brave Goranflo family has two children suffering from Batten Disease. Their daughter Hailey is in China right now and looks like she is improving less than half way through her full stem cell treatment. And, the son Carter is waiting to see if he will be accepted into a new study at Cornell. However, if he isn't, he is on his way to China as well to join his sister:
Positive news for the Goranflo family who has two children battling Batten's Disease. Their daughter Hailey is in China and will receive her third stem cell treatment. But now her little brother Carter may not be headed to china to join her. Instead, he might receive treatment in the United States. “When we first found out about the children having the disease we contacted Cornell and several others doing study trials. Its called gene replacement therapy it's the cure for battens disease said Neil Goranflo, father of the two children.Neil says Hailey is stronger and more alert, even talking after receiving only two of the five stem cell injections. While Neil and Carter are thrilled to hear that Hailey is getting better, they're anxiously awaiting being all together again (REPAIR STEM CELLS DOING THEIR JOB-DM)Click here to read about this brave family